This is wrote somewhere in Oct 2006. I've wrote it for Komuniti OKU.
Dear friends,
It has been a while since the last update on Nurul Adibah that I’ve sent to this group. Now, Nurul Adibah is already 2 years old. To me, she is so cute, so lovely, she is just so special in her own way. Of course every mother would felt the same way to their loved ones.
At this age, for a normal toddler, they can already walk and talk. For Nurul Adibah, the best she can do is to use her head and her legs to more forward. When the head reached the wall or block by something, meaning cannot push forward anymore, she will ask for help by crying. She is so expert moving herself in that manner to explore the house. And when the legs reached the door’s curtain, she will smile like saying “Ahah…something is there”, and she will push the curtain with her legs, like playing with the curtain. Her legs are much stronger than her hand because she do a lot of things with her legs (she always refuse to hold anything with her hand, even the feeding bottle). And sometimes, when the head knock to something, like chair, she did not cry but she will rub her head (at the contact point) with her hand and will not move towards that direction anymore. As per the malay saying , cepat serik.
Although she can’t hear, she can’t see, she can still smile. She smiles a lot and makes a lot of unknown noises too J When she’s busy playing on her own, shaking the hand and the legs, and then you come near her, she will stop as if she saw you coming near her and she will remain static for a while until you touch her. I think she can feel the wind and that is how she knew, if there’s anybody moving towards her. Another method that she used to understand her environment is by using her tongue; she always wet the ball J
Last year, GH Penang referred Nurul Adibah to HUKM. The purpose is to see if she can do/qualified for the cochlea implant for the ear. GH Penang intention is very good, they want to improve her hearing. Thus, they sent us to HUKM. But there’s nothing much HUKM can do, as the implant will only serve the purpose if the child having good IQ. The implant will serve no meaning, if the brain can’t help to interpret the sound/noise. We fully understand this. According to the GMC pediatrician, Nurul Adibah may be having Congenital Rubella Syndrom. Therefore, the brain may not be so good and that the cochlea implant may not be able to help her.
Whatever……..this is the best that Allah had decided for Nurul Adibah and for us, me, my husband and for Afiq too, Adibah’s elder brother. Afiq often asked when Adibah’s will be able to walk, why she took too long to grow up compared to others and why she did not look at him whenever he talked to her. But he loved her so much, of course. He often said “Adibah jangan nangis yer, Abang ada sini”. And you knew, Adibah will not be able to hear him.
Having Nurul Adibah is one thing. I think I can handle that already but then when all these questions asked by Afiq… it often broke my heart. Yes, sometimes when he asked too many question, it felt like it is much more difficult to handle him than her. Now Afiq is 5 years old. I’ve decided to tell him about Adibah soon. I’ll find a right time, to tell him….
Huhhh….life is not easy, but for every obstacle there are always solutions. And when you felt down, upset, look at others below you, you’ll surely felt grateful. This is what I always tell myself! May be you guys can do the same thing too. Try, it might work for you too.
Till we meet again.
Dear friends,
It has been a while since the last update on Nurul Adibah that I’ve sent to this group. Now, Nurul Adibah is already 2 years old. To me, she is so cute, so lovely, she is just so special in her own way. Of course every mother would felt the same way to their loved ones.
At this age, for a normal toddler, they can already walk and talk. For Nurul Adibah, the best she can do is to use her head and her legs to more forward. When the head reached the wall or block by something, meaning cannot push forward anymore, she will ask for help by crying. She is so expert moving herself in that manner to explore the house. And when the legs reached the door’s curtain, she will smile like saying “Ahah…something is there”, and she will push the curtain with her legs, like playing with the curtain. Her legs are much stronger than her hand because she do a lot of things with her legs (she always refuse to hold anything with her hand, even the feeding bottle). And sometimes, when the head knock to something, like chair, she did not cry but she will rub her head (at the contact point) with her hand and will not move towards that direction anymore. As per the malay saying , cepat serik.
Although she can’t hear, she can’t see, she can still smile. She smiles a lot and makes a lot of unknown noises too J When she’s busy playing on her own, shaking the hand and the legs, and then you come near her, she will stop as if she saw you coming near her and she will remain static for a while until you touch her. I think she can feel the wind and that is how she knew, if there’s anybody moving towards her. Another method that she used to understand her environment is by using her tongue; she always wet the ball J
Last year, GH Penang referred Nurul Adibah to HUKM. The purpose is to see if she can do/qualified for the cochlea implant for the ear. GH Penang intention is very good, they want to improve her hearing. Thus, they sent us to HUKM. But there’s nothing much HUKM can do, as the implant will only serve the purpose if the child having good IQ. The implant will serve no meaning, if the brain can’t help to interpret the sound/noise. We fully understand this. According to the GMC pediatrician, Nurul Adibah may be having Congenital Rubella Syndrom. Therefore, the brain may not be so good and that the cochlea implant may not be able to help her.
Whatever……..this is the best that Allah had decided for Nurul Adibah and for us, me, my husband and for Afiq too, Adibah’s elder brother. Afiq often asked when Adibah’s will be able to walk, why she took too long to grow up compared to others and why she did not look at him whenever he talked to her. But he loved her so much, of course. He often said “Adibah jangan nangis yer, Abang ada sini”. And you knew, Adibah will not be able to hear him.
Having Nurul Adibah is one thing. I think I can handle that already but then when all these questions asked by Afiq… it often broke my heart. Yes, sometimes when he asked too many question, it felt like it is much more difficult to handle him than her. Now Afiq is 5 years old. I’ve decided to tell him about Adibah soon. I’ll find a right time, to tell him….
Huhhh….life is not easy, but for every obstacle there are always solutions. And when you felt down, upset, look at others below you, you’ll surely felt grateful. This is what I always tell myself! May be you guys can do the same thing too. Try, it might work for you too.
Till we meet again.
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